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This GivingTuesday, and through the end of 2021, The NBIA Disorders Association invites you to...




It’s what we’re choosing to do this year.


When it comes to NBIA, we embrace the joy. The laughs. The hardship. The struggle. The unknown. Every moment.  


And for our NBIA loved ones, we embrace the fight.


The fight for the day when NBIA Disorders no longer cause pain, suffering, and loss of life.


This GivingTuesday, embrace NBIA and all it brings us, teaches us, and shows us.

Help us further our efforts to support families, accelerate research, and find a cure for NBIA, so that these individuals can continue to show us all that there is to embrace.  

All donations will be matched dollar for dollar, up to $10,000, thanks to some very generous anonymous donors in the NBIA community.

This GivingTuesday, embrace our cause.  



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Donate on our IG stories, and share your earned "Donated" sticker!

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What is NBIA?

Neurodegeneration with Brain Iron Accumulation is a group of rare, genetic neurological disorders characterized by abnormal accumulation of iron in the brain and a progressive movement disorder. Some affected individuals eventually lose the ability to walk, talk or chew food and become totally dependent on others for all their needs. They also may suffer from severe dystonia, seizures, global delays and eye disease, as well as Parkinsonism, dementia, and sometimes brain cell atrophy. At this time there is no cure for NBIA.

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