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This GivingTuesday, and through the end of 2022, The NBIA Disorders Association invites you to join us...



Just as individual notes are joined together to create beautiful musical compositions, each individual NBIA family composes our beautiful NBIA community.    

After an NBIA diagnosis, the lives our families once knew are changed forever. 

There are times of grief, loneliness, and heartache.      

Similar to the sunrise after darkness, NBIA Disorders Association lights the way during our families' greatest time of need.  That light is fueled by our NBIA loved ones. 

Each one of them is a ray of sunshine, persevering through life one day at a time. 

Stand with us, together in Harmony, as we fight for a cure for all NBIA disorders.

We will not let NBIA take our sunshine away.

Help us further our efforts to support families, accelerate research, and find a cure for NBIA.


This GivingTuesday, live in Harmony.  





Donate on our IG stories, and share your earned "Donated" sticker!



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What is NBIA?

Neurodegeneration with Brain Iron Accumulation is a group of rare, genetic neurological disorders characterized by abnormal accumulation of iron in the brain and a progressive movement disorder. Some affected individuals eventually lose the ability to walk, talk or chew food and become totally dependent on others for all their needs. They also may suffer from severe dystonia, seizures, global delays and eye disease, as well as Parkinsonism, dementia, and sometimes brain cell atrophy. At this time there is no cure for NBIA.

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